More practically, the issue of genomic privacy is crucial for a small lab working in bioinformatics. Basically, because of privacy concerns, the ecosystem of medical and genomic data is going to change considerably in the future -- becoming both larger but also more locked-down -- and consequently, it'll have to rely more on robust intra-institutional collaborations than large public databases .
* Recent USA Today op-ed by Dov Greenbaum & myself on this topic
* Selection of my previous opeds & letters to the editor on genomic privacy
Even more at:
* Some academic papers I have written about privacy
* NCI Workshop on Genomic Privacy
* Recent piece in the NY Times related to genomic privacy
"Poking Holes in Genetic Privacy,"
* Amusing Atlantic article on hacking the president's genome
I thought this was a good counterpoint to PRISM
Here's my unpublished letter in response to this: